BECOME DS.ON AMBER: JAX RAMIREZ IS LIKE ANY OTHER 7-YEAR-O.LD >> I’M STUCK. >> PUSH. AMBER: HE LIKES TO PLAY,RAW, D AND HANG OUT WITH HIS LITTLE BROTHER AT THEIR HOME JUST OUTSIDE OF PITTSURGH. >> HE GOES TO CYBER SCHO.OL HE LOVES HIS LITTLE FRIENDS. HE ALWAYS SAYS HE WISHES HE COULD SEE THEM IN PERSON, AND I DOTO, AMBER: BUT IT’S TOO RISKY. JAX HAS IPEX SYNDROME. >> IPEX IS THIS RARE SERUP AUTOIMMUNE BUG. IT TARGETS EVERY ORGAN IN HIS SYSTEM. AMBER: WITHOUT A BONE MARROW TRANSPLANT, JAX COULD DIE. >> WE RAN THE BONE MARROW REGISTRY, AND HE HAS NO MATCHES. AMBER: JAX’S DOORCT, DR. JESSIE BARNUM AT UPMC CHILDREN’S HOSPITAL, SAYS BECAUSE SOME ETHNIC GROUPS HAVE MORE COMPLEX TISSUE TYPES THAN OTHERS, A PERSON’S BESTHA CNCE OF FINDING A DONOR IS WITH SOMEONE OF THE SAME ETHNIC BACKGROUND. >> IT’S A HARD CONVERSATION TO HAVE, TO TELL A FAMILY THAT WE’VE SEARCHED AND SEARCHED THROUGH ALL THESE DONORS, AND STILL HAVEN’T FOUND A MATCH. AMBER: JAX’S FATHER IS MEXICAN. HIS MOTHER IS GERMAN, IRISH, AND SLOVAK. ACCORDING TO THE NATIONAL BONE MARROW REGISTR--Y >> 70% OF CAUCASION PEOPLE WILL FIND A MATCH. 48% OF HISPANIC AND LATIS WILLNO FIND A MATCH, AND 29% OF AFRICAN AMERICANS WILL FIND A MATCH. >> SO THEY’RE EITHER FULLY MATCHED, NOT MATCHED AT ALL, OR % 50OF THE TIME, THEY ARE HALF MATCHED. AMBER: MISSY AND HER HUSBAND HAVE MADE IT THEIR MISSION TO NOT ONLY FIND A MATCH FOR JAX, BUT TO DIVERSIFY THE REGISTRY. >> I’M GOING TO BE HIS ARMOR, AND WE’RE GOING TO FIGH